Privacy Policy
Version 3
Last Update: 13/08/2026
This privacy notice explains your rights as a person receiving care regarding the data opt-out policy, how data is collected, used, retained and disclosed in line with UK data protection laws.
How and why personal information is collected?
“Processing” can mean collecting, recording, organising, storing, sharing or destroying data.
We must have a lawful basis for processing personal data and as a registered care provider, it is essential this is collected, including financial information, to enable us to provide ongoing quality care and support.
Information is contained in individual files, electronic and manual and other record systems which are subject to strict security and authorised access policies.
This data is held because we have a legal obligation to do so, usually under the Health and Social Care Act 2012 or Mental Capacity Act 2005.
We process “special category” data because:
- it is necessary due to social security and social protection law, mostly in safeguarding situations and where it is necessary to protect your fundamental interests when you are physically or legally incapable of providing consent
- it is needed for provision and management of social care services.
- we are required to provide data to the Care Quality Commission (CQC), our regulator, as part of public interest obligations.
Data may be processed with your consent. If we need to ask for your permission, you will be given a choice and ask that confirmation is provided.
We will also explain clearly to you what we need the data for and how you can withdraw your consent at any point.
What data do we have?
- basic details and contact information, such as name, address, date of birth and next of kin, email address that you or your power of attorney have asked we hold
- financial details, such as how you fund care or funding arrangements.
- health and social care data, which may include physical and mental health data
- data may be recorded about your race, ethnic origin, sexual orientation or religion.
Where is data processed?
Data is collected from or shared with:
- the person receiving care or their legal representative(s)
- third parties.
There is a legal obligation to share information with some organisations, such as for safeguarding purposes, the CQC, police or other law enforcement agencies if requested by law or a court order.
Data is retained in line with the Information Governance Alliance’s guidelines
Your rights
Rights regarding personal data:
- you have the right to access personal data and can request a copy of all data held and will not normally be charged for this
- incorrect information can be updated if any personal data is inaccurate or incomplete
- you can request any personal data which is no longer necessary for the purpose we originally collected it for to be deleted
- you can request that we restrict processing data if we no longer require your personal data for the purpose we originally collected it for, but you do not wish it to be deleted
- if we have asked for your consent to process data, this can be withdrawn at any time
- if we are processing your data as part of our legitimate role or to complete a task in the public interest, you have the right to object to that processing.
What does this mean for me as someone who uses services?
Information is only used where allowed by law and never for insurance or marketing purposes without explicit consent. The care service will always seek written permission from you before sharing personal information with anyone else, for purposes other than direct care.
However, if you do not want your personal date to be used for planning or research, you can stop this.
National Data Opt-Out
The national data opt-out gives everyone the choice to stop health and social care organisations sharing their “confidential patient information” with other organisations where it is used for reasons beyond individual treatment and care, such as research and planning purposes.
The term “confidential patient information” is used as the NHS do and where the opt-out is in force. In this context “confidential patient information” relates to information about people’s health or social care that may identify them.
Adult Social Care providers, in line with your wishes and the national data opt-out, are required to apply national data opt-outs to use or disclose confidential patient information for purposes other than your direct care.
As a care service, we have an obligation to inform you about your right to choose regarding opting out of data sharing and are clear about how and when such a preference has been applied and a record of any decision regarding data opt-out kept.
Most care services do not use or share people’s information beyond direct care and this care service does not share the information of people who use it with any pharmaceutical, medical or other researchers and do not use sensitive information for purposes beyond your care and treatment.
We only share personal information on a “need to know” basis, observing strict protocols when doing so. Most of the data sharing is with other professionals and agencies involved with care and treatment.
The only exceptions to this general rule would be where we are required by law to provide information, eg to help with a criminal investigation.
Following completion of data processing checks, if certain national data opt-out do not apply the following clause may be added:
“At this time, we do not share any data for planning or research purposes for which the national data opt-out would apply. We review all of the confidential patient information we process on an annual basis to see if this is used for research and planning purposes. If it is, then individuals can decide to stop their information being shared for this purpose.” (Digital Social Care)
If you are happy with this use of personal information, you do not need to do anything but can change this decision at any time.
If you choose to opt out, your confidential patient information will still be used as necessary to support your individual care delivery.
As national data opt-outs are set or changed by individuals themselves, this must be done by you, or someone legally able to act on your behalf. More details about the wider use of confidential personal information and to register your choice to opt out can be found at: https://digital.nhs.uk/services/national-data-opt-out or by phone: 0300 303 5678.
To opt out by post on behalf of someone who lacks capacity, fill out and print off Manage Another Person’s Choice on Their Behalf, NHS Data Opt-Out by Post. It can only be done by an individual who holds an LPA.
All health and social care CQC-registered organisations in England must be compliant with the national data opt-out by 31 July 2022.
Information is available on request from the manager for people receiving care, next of kin or appointed Lasting Power of Attorney (LPA).
Raising concerns
Information Commissioner’s Office Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF https://ico.org.uk/global/contact-us/.